Minutes June 11, 03

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Community Living Coalition - June 11, 2003 1pm

Minutes

1. Introductions were made around the room

2. Update on the Senior Parents Forum: There was a Forum held on April 8th, 2003 that was attended by over 90 people.  A working group developed a brief and then a delegation presented their report to the board of the Interim Authority.  There will be a follow-up forum on July 4, 2003 - New Westminster Library - 10am where the committee will receive and discuss the response from the Board of the Interim Authority.

3. Update on Transitions Forum: May 31, 2003 - 22 people showed up - quick update on Interim Authority progress, then brainstorming on the issues and possible solutions for individuals and families facing the transition from children's services to adulthood.  There will be a report developed that will be circulated through the coalition mailing list to gather input from around the province.  The final report will be sent to the Interim Authority board to ensure they are considering the transition issues that families are facing.

bulletWhat about other transitions in adults' lives?  The transitions people face as they age? The transitions people face as their family members pass away? 
bulletWaiting lists for young adults create huge challenges for people who have been used to the structure of school.  The need to focus on people's deficits to get access to programs is particularly discouraging to families and individuals.
bulletPeople discussed wanting "a life" not "a day program".

4. Interim Authority Update:

bulletChildren's Services for Community Living staying with Adult Services: While there was an agreement on April 17, 2002 on keeping Children's and Adult's Community Living Services together, there seems to be some discussion within the Ministry of reviewing that decision. 
bulletReference Groups: There will be an invitation to participate in reference groups for families, self-advocates and service providers posted on the Interim Authority site this week.  There will be people from each of 17 areas currently being considered for Community Living Centres selected for the Family, Self-Advocate & Reference Group members.
bulletCommunity Information Sessions: The Interim Authority will be hosting a series of information sessions across the province in July and August.  Watch the Interim Authority site for more information.
bulletBudget information update: In April, the Treasury Board initiated a review of the three year budget plan, concerned about implementation of this year's budget and the plan for fiscal year 2004-2005.  There is concern across the Ministry about the inability the inability to reach the budget targets for next year.  Ministry staff have worked with Treasury Board to develop new strategies for achieving those budget targets, but many of those strategies would put children, adults and families in danger.  Treasury board has tentatively committed to providing a response to the budget review by June 17, 2003.  This is only a tentative date.
bulletFamilies and self-advocates are meeting with their MLA's to build understanding of the issues facing families and self-advocates.
bulletSafeguards: Discussion around what families should do if they need assistance: the Ministry is responsible for current service delivery and planning for individuals.  Families should go to their social worker to address concerns.  If there is a restructuring initiative causing a disruption to your service that you are unhappy with, you can approach Jane Holland, the Service Quality Advocate.  Her office has received additional resources to respond to family and self-advocate concerns about changes to services.  To reach her:
bulletIn Vancouver, call 604-775-1238
bulletIn Victoria, call 250-387-6121 and ask for transfer to 604-775-1238
bulletIn other parts of the Province, call 1-800-663-7867 and ask for transfer to 604-775-1238

Safeguards for individuals who don't have friends and family acting as advocates: There are many people in community living services who are disconnected from family.  How can the community respond to ensure all people have access to advocacy, relationships, and community membership?  In particular, when service providers are proposing changes to services, who will assist vulnerable individuals to provide informed consent to changes?  Volunteers are needed to create a forum on the issue of individuals in service who don't have family connections.  Richard Faucher volunteered and will approach Jack Styan.  Cathy Grant, Jo Dickey and Jordan Thurston are also interested but may not have time.  If you are interested in participating in this working group, call Richard Faucher at Burnaby Association - 604-299-7851 or rfaucher@bamh.org .

5. Communications Committee: A small committee that needs more help.  Linda Perry, Maria Glaze, Brian Salisbury, Ernie Baatz and Lorraine Ward - but people have limited time to address ongoing communication needs of the coalition:

bulletSupporting Community Facilitators - 30 people across the province attempting through person-to-person contact to increase understanding of the goals of the coalition
bulletEnhancing communications efforts around critical issues to ensure the coalition membership can address them effectively
bulletCreating new ways to communicate the coalition message across the province and enhance the dialogue.

6. General Updates:

bulletDialogue on Citizenship - Who Cares? June 24, 2003 - 7pm to 9:30pm - Wosk Centre for Dialogue
bulletSocial Co-ops and Social Care: A new model for serving vulnerable individuals: June 26, 2003 - 7:30 to 9:00pm - SFU Harbour Centre
bulletTertiary Care Working Group - Family members had concerns about how the working group was working with Willow and with Mental Health teams?  Is there a need for the urgent timeline of closure by March 31, 2004 when the buildings will exist til summer 2005? It was suggested we invite Nancy Hall, the consultant to the Tertiary Care Working Group to come to the next coalition meeting to discuss their workplan.  The chairs will contact her.
bulletBCACL update: last weekend was AGM - New president is John Kehler.  New board members are Nancy Hoyano, Star Mahara and Darryl Harand. 
bulletFamily Support Institute: New president is Donna Diggens.
bulletWoodlands Abuse Report: The Minister, Gordon Hogg, made an apology for the mistreatment of individuals at Woodlands and announced a Legacy Fund that will allow individuals who lived at the provincial institutions to receive therapy.  BCACL and families expressed concern that the apology seemed to minimize the abuse people experienced, and feel the legacy fund should not limit individuals' abilities to pursue redress for past abuse.  There are two class actions being pursued in provincial court.  A hearing has taken place before a judge.  The judge will rule on which class action is allowed to proceed. Other families would like to pursue a negotiated settlement that avoids court, but cannot proceed until the class action process is confirmed.  Once the process is confirmed, individuals can opt out of the class action process.  The coalition will continue to share information as it arises.

7. Next Meetings:

bulletSenior Parents Forum - July 4, 2003 - New Westminster Library
bulletCoalition Meeting - July 9, 2003 - Burnaby Association - 1pm to 4pm
bulletCoalition Meeting - August 20th, 2003 - Burnaby Association - 10am to 2pm

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Last updated: 07/25/08