Minutes Sep 17,04

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Community Living Coalition

Meeting Minutes

September 17, 2004

1. Introductions were made around the room.

2. Update on Meeting between representatives from the Coalition, Family Net, FSI and BCACL.

bulletJoint Vision Statement was developed to help family organizations advocate effectively.  It will be circulated once typed up.
bulletThere was much open discussion between the organizations to build consensus on common issues and families present felt it was a positive meeting.

3. Update on Self  Advocates' Rally - September 10, 2004 at the Minister's Office in Port Moody.  Upwards of 50 people met to express our concern about the lack of representation for self advocates on the Board of Community Living British Columbia.  There was some good media coverage for the rally.

4. Update from the Executive Directors' Network - BCACL Member agencies' Executive Directors met on Wednesday and Thursday and discussed leadership, innovation, children's services, and retention strategies.  There was much discussion about advocacy strategies - many individuals and families are on waitlists and the Ministry must increase funding for community living services.  The Provincial government needs to be targeted with effective advocacy strategies to get some of the budget surplus directed towards Community Living.  Other discussions focused on the collective agreement implementation and collaborative fundraising strategies.

5. Update on the Interim Authority:

bulletThere is a new ADM/CEO.  Phil Goodman has been hired.  He previously worked in Alberta and Manitoba.  He starts October 1, 2004.
bulletThe Ministry has hired Fred Milowsky to do a review of the operational plan of the Interim Authority.  He has interviewed board members, IA consultants, and advocacy organizations.  Many of the people interviewed expressed concern about the focus of his questions.  His background as a Regional Executive Director in Vancouver doesn't provide people with much comfort about his experience with community living, his previous work with families and his work in community development.  The Community needs to be prepared to counter negative aspects of the report with facts and history and also to engage the new ADM / CEO with the perspective of families and the community so that he understands the directions intended.
bulletWillow Clinic: Willow has two groups of residents - one group there for short term assessment and stabilization, and another group that are long-term residents, stabilized and waiting for community placement.  The long-term group of residents all have new community placements and all will have moved by the end of September, 2004.  The short-term assessment functions are being connected with the Provincial Health Authority and a 10 bed resource is being proposed for UBC or VGH or the Maples site, or back to the Willow Building.  There needs to be some community involvement/input to the planning to keep aware of next steps.

6. Community Living Restructuring Fund: Year One report is on their website.  $5,600,000 in funds have been disbursed in the first year.  The majority of grants went to families to improve accessibility in people's homes.  The majority of the funding went to Agencies to restructure services.  Savings in operational funding are calculated at $3 Million per year due to the investments made by the Fund.  www.CLRestructuringFund.ca .  The volume of applications has increased significantly and has slowed down the approval process.  Currently, it takes three to four months to get an application approved.  There have been applications from around the Province.  There have only been a limited number of applications approved to add a fifth bedroom to a group home (less than 10). There is an annual report on their website.  The Deputy Minister of MCFD, Alison MacPhail, met with the committee this week and was encouraged to request ongoing MCFD support to the fund.

7. Making a Difference Conference: Organizer Cheryl Hughes was present to request additional volunteers for an organizing committee for the annual Making A Difference Conference in March 2005.  She is available at: 604-535-4812 - email address: heartwork@telus.net .

8. Family Net: Family Net AGM passed a motion supporting meaningful involvement of self-advocates and families in the decision-making of the Community Living Authority. "FamilyNet supports meaningful involvement of self advocates and families in decisions affecting their lives and in directing policies of the Community Living B.C. Board"
 
(in discussions before motion we felt that if a self advocate is appointed to the CLBC Board there should be two. We also discussed great concern over IA board members being put in a position of being agents for the government, and having to be in a position of cutting funding to other people's services as an example).

9. Advocacy / Strategies for action:

bulletCoalition needs to write a letter to the new Minister introducing the community role and our vision for the Community Living Authority
bulletCoalition needs to write a letter to the new ADM/CEO introducing the community role and our vision for the Community Living Authority
bulletNeed to request meetings with the above people.
bulletNeed a small working group to draft letters and coordinate meetings.  Laney, Tim, Linda, Jane, Jackie and Anne will be the action committee.
bulletCoalition needs to express our concerns about the lack of community involvement on the tertiary care planning - phone calls to MCFD.
bulletRequest meeting with Lois Hollstedt (Chair of IACLBC) and Alison MacPhail (Deputy Minister) to express community concerns about the sidelining of the community in ongoing Authority planning. 
bulletInterim Authority Board Meetings are open to the public so perhaps the coalition should ensure that there is more public in attendance at these meetings.  It was suggested that we have at least one family member, one self-advocate and one service provider attending each meeting.  Sue Salter will coordinate attendance of coalition members at Board Meetings. Next IA Board meeting is October 19, 2004.
bulletPriority Advocacy Issue: Address the waitlist issue.  Families and Individuals are on waitlists for vital services.  Children are not getting Early Intervention services - they are on waitlists beyond the age of service eligibility.  There is a crisis for kids turning 19 years old and facing no services.  There is a crisis for aging families who are 80 and 90 years old and their sons and daughters are still living at home and don't get services until a parent ends up in hospital.  There are families on waitlists for respite - the cheapest, most proactive support available for families.  This support must be provided in a timely way to families.
bulletWaitList: Fraser Region: 187 people waiting for residential care, 204 people waiting for day programs and 105 people waiting for respite care - Adults only.
bulletWaitlLists for other regions are being gathered to get a broader picture for the province.
bulletBudget Surplus Issue: The Minister of Finance has requested public input on funding priorities but has left social services off the list of priorities - there is a checklist of Health, Education, Post-Secondary Education, Other Spending, Debt Reduction, or Tax Cuts.  Coalition members should fax the page with those options to their MLA and the Premier and ask: What about Social Services?  What about services to the most vulnerable people in the Province?  Coalition members should also write letters to the editors of local and provincial papers to raise community awareness of the fact that the savings came from the most vulnerable people in the Province and the first place investments should happen is for people with disabilities and their families. 
bulletVancouver Sun Letters: http://www.canada.com/vancouver/vancouversun/letters.html
bulletThe Province: http://www.canada.com/vancouver/theprovince/letters.html
bulletVictoria Times Colonist: http://www.canada.com/victoria/timescolonist/letters.html
bulletThe Budget Consultation Process has a webform for you to provide feedback.
bulletLetter of concern to the Community Living Restructuring Fund regarding providing funding to enable agencies to create 5 bedroom homes.

10. Individualized Funding / 1-1 support: Phase One of the IF project has ground to a halt.  Some plans have been approved, other families have submitted proposals, but have not been approved, and now most facilitators have returned to their former MCFD jobs.  There have been no plans that actually received funding though.  It would be good to invite someone from the Interim Authority IF project to come to the next meeting and give us an update.  A family was told by an MCFD staff that it is now a policy that 1-1 supports will not be funded. 

11. Next Meeting: September 30, 2004 - Thursday - Burnaby Association 10am to Noon.  Co-Chairs will be Linda Perry and Jane Short.  Coalition members should consider some more volunteers to co-chair and share the workload.

12. Meeting adjourned at 12:15pm.

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